Who We Are

Connected across borders, working together for families.
We are a global foundation with branches in the United States, Europe and Australia. We advocate for families and fund work that aims to improve the lives of people affected by WWOX-related conditions.
Families, researchers, clinicians and industry partners work together to share knowledge, drive research forward and build a stronger community.
Our Mission
Our mission is to promote and fund ongoing medical research dedicated to developing treatments and finding a cure for WWOX-related syndromes.
Support Families
Provide a support framework for families caring for children with WWOX deficiency.
Advance Research
Fund scientists pursuing research related to WWOX and future treatments.
Connect the Community
Connect patients, researchers and industry partners for ongoing clinical studies through our Patient Registry.
Improve Understanding
Help researchers to better understand the full spectrum of WWOX-related conditions.
Raise Awareness
Increase awareness among the public and medical community to support earlier and more accurate diagnosis.
One Foundation. Three Global Branches.
Our regional branches work together across time zones and borders, strengthening advocacy, family support and research collaboration for the entire WWOX Community.


