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Participate

You can join us in advancing the current research for a cure to WWOX gene related disorders.
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1

WWOX PATIENT REGISTRY

A registry that collects caregiver-reported information on patients with WWOX-related disorders based out of the University Of Sydney.

2

CITIZEN MEDICAL RECORD STUDY

You can help us advance the understanding of our disease by sharing de-identified medical records. 

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Please join Citizen and participate in our community's efforts to accelerate treatments.

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​*Currently open to US families only. 

3

JOIN THE CONVERSATION

Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.

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