top of page

Participate

You can join us in advancing the current research for a cure to WWOX gene related disorders.

Science Biotechnology DNA illustration and abstract illustration.jpg

01

WWOX PATIENT REGISTRY

A registry that collects caregiver-reported information on patients with WWOX-related disorders based out of the University Of Sydney.

CLICK HERE TO REGISTER 

03

JOIN THE CONVERSATION

Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.

JOIN HERE

02

INVITAE NATURAL HISTORY STUDY

  • Allows clinical researchers to see how the disease changes over time

  • Enables better endpoint selection to use in clinical trials

  • Reduces the time it takes to study new medicines in clinical trials

  • Currently open to US families only. 

CLICK HERE TO JOIN

Questions? 
Contact us, we are here to help. 

bottom of page
.iframe-container { width: 100%; height: calc(100vh - 350px); }