Participate
You can join us in advancing the current research for a cure to WWOX gene related disorders.
01
WWOX PATIENT REGISTRY
A registry that collects caregiver-reported information on patients with WWOX-related disorders based out of the University Of Sydney.
CLICK HERE TO REGISTER
03
ONLINE SURVEY STUDY
• An online survey to understand your experience as a caregiver and to provide input on the clinical trial design.
• Open to US, UK, and Australian families.
CONTACT:
wwox@patientinterviews.com
to complete a brief screening form and get a link to complete the survey
02
INVITAE NATURAL HISTORY STUDY
• A platform that uploads your medical images and records to a central database.
• Refreshed every 6 months.
Currently open to US families only.
CLICK HERE TO JOIN
04
JOIN THE CONVERSATION
Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.
JOIN HERE