Participate

You can join us in advancing the current research for a cure to WWOX gene related disorders.

01

WWOX PATIENT REGISTRY

A registry that collects caregiver-reported information on patients with WWOX-related disorders based out of the University Of Sydney.

CLICK HERE TO REGISTER

03

JOIN THE CONVERSATION

Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.

JOIN HERE

02

INVITAE NATURAL HISTORY STUDY

• A platform that uploads your medical images and records to a central database.

• Refreshed every 6 months.

Currently open to US families only.

CLICK HERE TO JOIN

Questions?
Contact us, we are here to help.