WWOX Foundation of America
The WWOX Foundation of America (WWOX USA) was created by a group of parents whose children suffer from WWOX-related diseases. It was established to reach and support families in the United States. Additionally, WWOX USA provides easier coordination and collaboration with scientists, researchers and the medical community in the United States. Our mission is:
to fund, promote and support medical research to treat WWOX diseases
support and advocate for WWOX families
raise awareness in the medical and scientific community
The WWOX Foundation of America is a US 501(c)(3) public charity, we are registered non-profit in Washington State, USA. EIN# 87-4468134 UBI#: 604 842 221.
Board of Directors
Director and President
Stephen is the founder and President of the WWOX Foundation of America. He works in collaboration with Johann to help propel the strategic vision of the WWOX Foundation worldwide. Stephen began working with the foundation via fundraising campaigns, grant applications, and producing educational content for parents. He has a strong technical and project management background working as an engineer in the aerospace industry. Stephen lives near Seattle, Washington with his wife Karen and their two boys Luke and Jack both of whom suffer from WOREE Syndrome.
Secretary / Vice President
Karen joined the foundation volunteering in the "We Fight Together" fundraising campaign in 2020. In addition to her roles as the Secretary, she is also the Media Manager coordinating our social media channels' content, and graphics and collaborating with website design.
Karen is the proud mother of two beautiful boys Luke and Jack both affected by WOREE syndrome.
Board Member / Auditor
Johann is the founder of the WWOX Foundation (Australia) and sits on the board of the WWOX Foundation of America. He aids in coordinating joint strategic initiatives in the USA and internationally.
Johann comes from a strong technical background within the Information Technology Industry. Johann is the proud father of Lucia who is affected by WOREE syndrome and her brother Daniel.